Epidermolysis Bulosa (Cotton Wool Babies)

Epidermolysis Bulosa (Cotton Wool Babies)

Epidermolysis Bullosa (EB) is a rare genetic disease that causes the skin to be so fragile it blisters and peals at the slightest touch. EB is characterised by skin fragility with blister formation occurring spontaneously or following minor trauma.

Living with EB has been compared to the pain of third-degree burns. There is no cure, requiring lifelong agonising daily wound care and daily bandaging to protect and medicate wounds.

It is estimated that there are around 1,000 people in Australia who have some form of EB. It occurs in in all racial and ethnic groups and effects males and females equally.
Reference: DEBRAA Australia

Special Thanks
Glynn Davies, Chairman of Fundraising, paid special thanks to Neta and Bill Hales, Grace and Ian Davies, and Shirley and John Lawless for their exceptional work in organising the Sportsman/Auction Night held at the North Melbourne Social club in April. Over $15,000 was raised on the night with the “Cotton Wool Babies” and “Alzheimers Association” being the main beneficiaries.

In accepting a cheque for $5300 to assist the work of D.E.B.R.A.A. (Cotton Wool Babies), Peter Paterson commented that the organisation received no government assistance to research the causes and treatment of the disease. Peter paid tribute to the Club for the work it has done to assist the sufferers and their families and noted the night had been very enjoyable.

Reference: Changeover Bulletin, 1 July 1994