Guest speaker: Simone from the National Organisation for Fetal Alcohol Spectrum Disorder

NOFASD is the peak body for parents, caregivers and individuals affected by Fetal Alcohol Spectrum Disorders (FASD). NOFASD’s services include a confidential helpline running 365 days a year, online education and support, downloadable resources, lived experience in the expert advisory groups, and providing education and awareness about FASD through training, conferences, advisory boards and the media.

 

In her role at NOFASD, Simone is committed to raising awareness about FASD and advocating for individuals and families impacted by the condition.

 

FASD is a lifelong condition that can affect learning, memory, planning and more. There are 428 separate conditions related to FASD.

 

There’s no safe amount of alcohol, or safe type of alcohol or timing of drinking during pregnancy. 50% of pregnancies in Australia are unplanned, and 1 in 13 pregnancies where drinking is involved result in FASD.

 

78% of kids first receive an ADHD diagnosis before FASD. When looking at a list of difficulties people with FASD often experience, that same list is applicable to ADHD. So how do you know if it’s ADHD or FASD specifically, especially when FASD kids can also have ADHD?

 

The estimated prevalence of FASD in Australia is 3.64%. That’s one child in every classroom in the country.

 

At present, there’s no medical, psychiatric or education related training for FASD. NOFASD is working with governments to bring much needed education to the classrooms as well, as teen pregnancies involving drinking is also an issue.

 

Some common myths about FASD include:

– Myth: FASD only occurs when someone drinks heavily during pregnancy.

– Myth: FASD only impacts certain communities and populations.

– Myth: FASD only affects children.

 

So how can we make a difference?

– We can remember each individual is unique, with their own strengths and skills.

– Learn about FASD and share accurate information.

– Challenge stigma and misconceptions.

– Use respectful person centred language.

– Creative inclusive and supportive environments.

– Be patient and adapt our communication.

– Support families, carers and communities.

– Advocate for understanding, awareness and equitable access to support.

 

To learn more about FASD and the vital work of NOFASD, please visit the NOFASD website at https://www.nofasd.org.au/

 

September is International Fetal Alcohol Spectrum Disorder Awareness Month, dedicated to raising understanding of FASD. You may have seen landmarks around Melbourne and Australia lit up in red! Red Shoes Rock is a prominent campaign where people wear red shoes or socks throughout September to stand out and spark conversations about this often invisible disability.

 

Thank you Simone for visiting our club, and to you and the team at NOFASD for your very important work!